Jane Hill

Jane Hill

"A cure for Parkinson's would mean that my dad would not have had to live with 10 years of restricted movement and of medication. And it would have meant an enormous amount to my mum, who cared for him for many, many years.

It would mean so much for those who are diagnosed, their families, friends and those who care for them. It's something we all really have to fight for."

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What a cure means to Tony Tony is a researcherSince being diagnosed in 2002, I have kept myself active by doing voluntary work for PArkinson’s Uk. Know I am slowing down more with freezing.So what do I do,volunteer for a trial to find out if a drug used for dimensia and altsimers is suitable for Parkinson’s.My Wife Ann is very important to me as she cares for me as well.Ithink that every Parkinson’s sufferer needs help,and every family carer needs support,as Parkinson’s is a worsening ,disabling complaint.SOme carers may suffer from a serious illness themselves.Keep yourself active as long as you can,less stress,knowing you still have a challenge in life will keep those neurons in shape for longer. the most important thing is to take your medication on time.I find when IShaffle people don’t laugh at you, but if tell a mild joke they laugh with you. iThink the only problem I have is my Queens ENglish, all the best All the best long term Laymen TOny Wells
What a cure means to Lynne Lynne is a carer or family memberA cure for Parkinson’s would mean having my beloved husband back. Seeing him able to smile & look happy and proud, as he did on the day he gave our beautiful daughter away at her wedding this year. Seeing him not in pain. Seeing him able to walk freely again. Seeing him not struggle with words that won’t come out right. Seeing him enjoy eating a good meal. Seeing him get out of bed unaided, to dress without help & to look forward to the day ahead. Seeing him able to do the daily things that most of us take for-granted. Seeing him express his feelings and not be mistaken for being just a misery. Seeing him with the confidence he used to have. Most of all being able to have a normal life, a fulfilled life, an active life. To see the man in the photo who is still there behind the Parkinson’s mask. The man who wants so badly to enjoy life and to have fun again.
What a cure means to sandra sandra is a person with Parkinson’sA cure for me would be my dreams come true. I was only 40 when my symptoms started, now at 48 i suffer everyday with muscle pains and cramp and take lots of pills, which i have to pay for. My life is so restricted now i hardly do any fun things its so hard.
What a cure means to susan susan is a person with Parkinson’sa cure for parkinsons would mean everything to me and my family, i never thought that it would affect me in the way it has it can be so dificult to cope with some days and other days are better, a cure would be like a miracle i would be able to feel normal again i have forgot what its like, cant remember life before pd, people look at you in disbelief when you tell them you have pd they say but you look so normal but they dont see me 24/7 my family see the good and the bad days and i would not get through each day without my hubby so i hope a cure is found for my sake and for his.
What a cure means to Jack Jack is a carer or family memberI am 12 years old, and my dad was diagnosed 13 years ago. I was never brought up in the same fashion as all of my friends at school, I was taught to ride a bike by my mum, with my dad watching but sitting, my dad lost his job as a pilot at BA because of parkinson’s disease. I run a “tuck shop” at school and I will donate the proceeds to Parkinson’s UK so far in 7weeks I have raised around £190.
What a cure means to J.A. J.A. is a person with Parkinson’sIt would be nice to be normal again - and free from depending on medication that sometimes works.
What a cure means to Elaine Elaine is a person with Parkinson’sNot having people trying to assist me, with things I can manage slowly. Like getting money out of my purse.
What a cure means to David David is a person with Parkinson’sIt would mean getting my life back.
What a cure means to Jane Jane is a carer or family memberMy husband has worked incredibly hard all his life. He was found to have PD at the age of 51 when we were told it had probably started approx. 2 years before. Consultant said it would impact on our lives within 5 years, seriously impacting on our lives within 10. These last few months, it seems to have raced ahead. He tires easily, lumbers instead of walks, balance is deteriorating and shakes constantly. He is 56. I can see no future. Our retirement travelling and exploring is now gone. Financial security - thats what we were going to be doing for the next few years before retirement. Not sure thats going to happen now, as he may have to ‘retire’ a lot sooner than planned. Its heartbreaking for me to watch him deteriorate, hard for me to come to terms with the loss of our planned future, and difficult to try and hide this insecurity in front of my adult children. Its even harder for him. If there is a cure to it, lets hope its found soon.
What a cure means to Mary Mary is a person with Parkinson’sTo me a cure would mean everything, I would get my independance back which is very important to everyone. I would be able to do all of the things that I did before that now seems an effort. I would not feel a burden to my family and wouldn’t feel so alone and frightened of the future. It would mean I could get my life back and be the happy-go-lucky person that I once was.
What a cure means to Kay Kay is a person with Parkinson’sEach morning when i wake up the first thing I do is pick up my laptop. Being a very upbeat, positive, optimistic person means that I HAVE TO believe there is a cure imminent. Sometimes I check out The Parkinson’s websites, but most of the time I don’t. I am more likely to be messaging my family or old students who were also part of my family; checking on my acquaintances, seeing if all is well with the world. Living on my own with Parkinson’s Disease is a challenge, made more so by a young puppy. The new puppy is my reason to get out of bed. He is a rescue mutt and we have a lot in common! I can’t remember life without him now. I am slowly, with the aid of dictation software, writing my memoirs. There is so much to remember and I want my son and future generations to remember me as a fun, travelled, artist, Mom, professor, etc. not just someone sitting in a recliner waiting for a cure. I can’t think about the future without a cure. Finding a cure will be better than a lottery win even if it’s too late for me.
What a cure means to Anna Anna is a person with Parkinson’sIt would mean getting used to a completely different lifestyle. I can’t imagine how I would feel if such a change was instant! I’ve got used to my present circumstances gradually! I would probably be in shock!