Tumblr (3.0; @paw2012)http://findacure.parkinsons.org.uk/<img src="http://25.media.tumblr.com/6587fff7f04f5b4e7715bd725b4dddce/tumblr_mfbcdjhj4q1rt6ojvo1_400.jpg"/><br/><br/><header><h1><small>What a cure means to</small> Tony</h1> <p>Tony is a researcher</p></header><p>Since being diagnosed in 2002, I have kept myself active by doing voluntary work for PArkinson’s Uk. Know I am slowing down more with freezing.So what do I do,volunteer for a trial to find out if a drug used for dimensia and altsimers is suitable for Parkinson’s.My Wife Ann is very important to me as she cares for me as well.Ithink that every Parkinson’s sufferer needs help,and every family carer needs support,as Parkinson’s is a worsening ,disabling complaint.SOme carers may suffer from a serious illness themselves.Keep yourself active as long as you can,less stress,knowing you still have a challenge in life will keep those neurons in shape for longer. the most important thing is to take your medication on time.I find when IShaffle people don’t laugh at you, but if tell a mild joke they laugh with you. <br/>iThink the only problem I have is my Queens ENglish, <br/><br/>all the best <br/><br/>All the best long term Laymen TOny Wells</p>http://findacure.parkinsons.org.uk/post/38363126904http://findacure.parkinsons.org.uk/post/38363126904Thu, 20 Dec 2012 04:56:07 +0000researchers<img src="http://25.media.tumblr.com/c0debdcb617bf3f387ace8b2efc54b77/tumblr_meve0pRXr51rt6ojvo1_500.jpg"/><br/><br/><header><h1><small>What a cure means to</small> Lynne</h1> <p>Lynne is a carer or family member</p></header><p>A cure for Parkinson’s would mean having my beloved husband back. Seeing him able to smile & look happy and proud, as he did on the day he gave our beautiful daughter away at her wedding this year. Seeing him not in pain. Seeing him able to walk freely again. Seeing him not struggle with words that won’t come out right. Seeing him enjoy eating a good meal. Seeing him get out of bed unaided, to dress without help & to look forward to the day ahead. Seeing him able to do the daily things that most of us take for-granted. Seeing him express his feelings and not be mistaken for being just a misery. Seeing him with the confidence he used to have. Most of all being able to have a normal life, a fulfilled life, an active life. To see the man in the photo who is still there behind the Parkinson’s mask. The man who wants so badly to enjoy life and to have fun again.</p>http://findacure.parkinsons.org.uk/post/37712958967http://findacure.parkinsons.org.uk/post/37712958967Tue, 11 Dec 2012 14:10:01 +0000carers or family members<img src="http://25.media.tumblr.com/ee25362e360a2f66f526a26168b05f5c/tumblr_meu4zaWbk71rt6ojvo1_500.jpg"/><br/><br/><header><h1><small>What a cure means to</small> sandra</h1> <p>sandra is a person with Parkinson’s</p></header><p>A cure for me would be my dreams come true. I was only 40 when my symptoms started, now at 48 i suffer everyday with muscle pains and cramp and take lots of pills, which i have to pay for. My life is so restricted now i hardly do any fun things its so hard.</p>http://findacure.parkinsons.org.uk/post/37662337191http://findacure.parkinsons.org.uk/post/37662337191Mon, 10 Dec 2012 21:57:10 +0000people with parkinsons<img src="http://24.media.tumblr.com/tumblr_meo8czf5pE1rt6ojvo1_400.jpg"/><br/><br/><header><h1><small>What a cure means to</small> susan</h1> <p>susan is a person with Parkinson’s</p></header><p>a cure for parkinsons would mean everything to me and my family, i never thought that it would affect me in the way it has it can be so dificult to cope with some days and other days are better, a cure would be like a miracle i would be able to feel normal again i have forgot what its like, cant remember life before pd, people look at you in disbelief when you tell them you have pd they say but you look so normal but they dont see me 24/7 my family see the good and the bad days and i would not get through each day without my hubby so i hope a cure is found for my sake and for his.</p>http://findacure.parkinsons.org.uk/post/37410929035http://findacure.parkinsons.org.uk/post/37410929035Fri, 07 Dec 2012 17:24:35 +0000people with parkinsons<img src="http://24.media.tumblr.com/tumblr_meo830lB3S1rt6ojvo1_400.jpg"/><br/><br/><header><h1><small>What a cure means to</small> Jack</h1> <p>Jack is a carer or family member</p></header><p>I am 12 years old, and my dad was diagnosed 13 years ago. I was never brought up in the same fashion as all of my friends at school, I was taught to ride a bike by my mum, with my dad watching but sitting, my dad lost his job as a pilot at BA because of parkinson’s disease. I run a “tuck shop” at school and I will donate the proceeds to Parkinson’s UK so far in 7weeks I have raised around £190.</p>http://findacure.parkinsons.org.uk/post/37410645162http://findacure.parkinsons.org.uk/post/37410645162Fri, 07 Dec 2012 17:18:36 +0000carers or family members<img src="http://25.media.tumblr.com/tumblr_meo7xnxvcR1rt6ojvo1_400.jpg"/><br/><br/><header><h1><small>What a cure means to</small> J.A.</h1> <p>J.A. is a person with Parkinson’s</p></header><p>It would be nice to be normal again - and free from depending on medication that sometimes works.</p>http://findacure.parkinsons.org.uk/post/37410493243http://findacure.parkinsons.org.uk/post/37410493243Fri, 07 Dec 2012 17:15:23 +0000people with parkinsons<img src="http://25.media.tumblr.com/tumblr_meo7ubeZlp1rt6ojvo1_400.jpg"/><br/><br/><header><h1><small>What a cure means to</small> Elaine</h1> <p>Elaine is a person with Parkinson’s</p></header><p>Not having people trying to assist me, with things I can manage slowly. Like getting money out of my purse.</p>http://findacure.parkinsons.org.uk/post/37410397998http://findacure.parkinsons.org.uk/post/37410397998Fri, 07 Dec 2012 17:13:23 +0000people with parkinsons<img src="http://25.media.tumblr.com/tumblr_meo7rjRqM11rt6ojvo1_400.jpg"/><br/><br/><header><h1><small>What a cure means to</small> David</h1> <p>David is a person with Parkinson’s</p></header><p>It would mean getting my life back.</p>http://findacure.parkinsons.org.uk/post/37410321560http://findacure.parkinsons.org.uk/post/37410321560Fri, 07 Dec 2012 17:11:43 +0000people with parkinsons<img src="http://25.media.tumblr.com/tumblr_meo7ouXLob1rt6ojvo1_400.jpg"/><br/><br/><header><h1><small>What a cure means to</small> Jane</h1> <p>Jane is a carer or family member</p></header><p>My husband has worked incredibly hard all his life. He was found to have PD at the age of 51 when we were told it had probably started approx. 2 years before. Consultant said it would impact on our lives within 5 years, seriously impacting on our lives within 10. These last few months, it seems to have raced ahead. He tires easily, lumbers instead of walks, balance is deteriorating and shakes constantly. He is 56. I can see no future. Our retirement travelling and exploring is now gone. Financial security - thats what we were going to be doing for the next few years before retirement. Not sure thats going to happen now, as he may have to ‘retire’ a lot sooner than planned. Its heartbreaking for me to watch him deteriorate, hard for me to come to terms with the loss of our planned future, and difficult to try and hide this insecurity in front of my adult children. Its even harder for him. If there is a cure to it, lets hope its found soon.</p>http://findacure.parkinsons.org.uk/post/37410246545http://findacure.parkinsons.org.uk/post/37410246545Fri, 07 Dec 2012 17:10:06 +0000carers or family members<img src="http://24.media.tumblr.com/tumblr_meo7lr0ri31rt6ojvo1_500.jpg"/><br/><br/><header><h1><small>What a cure means to</small> Mary</h1> <p>Mary is a person with Parkinson’s</p></header><p>To me a cure would mean everything, I would get my independance back which is very important to everyone. I would be able to do all of the things that I did before that now seems an effort. I would not feel a burden to my family and wouldn’t feel so alone and frightened of the future. It would mean I could get my life back and be the happy-go-lucky person that I once was.</p>http://findacure.parkinsons.org.uk/post/37410163183http://findacure.parkinsons.org.uk/post/37410163183Fri, 07 Dec 2012 17:08:15 +0000people with parkinsons<img src="http://24.media.tumblr.com/tumblr_meo7i9jCSf1rt6ojvo1_500.jpg"/><br/><br/><header><h1><small>What a cure means to</small> Kay</h1> <p>Kay is a person with Parkinson’s</p></header><p>Each morning when i wake up the first thing I do is pick up my laptop. Being a very upbeat, positive, optimistic person means that I HAVE TO believe there is a cure imminent. Sometimes I check out The Parkinson’s websites, but most of the time I don’t. I am more likely to be messaging my family or old students who were also part of my family; checking on my acquaintances, seeing if all is well with the world. Living on my own with Parkinson’s Disease is a challenge, made more so by a young puppy. The new puppy is my reason to get out of bed. He is a rescue mutt and we have a lot in common! I can’t remember life without him now. I am slowly, with the aid of dictation software, writing my memoirs. There is so much to remember and I want my son and future generations to remember me as a fun, travelled, artist, Mom, professor, etc. not just someone sitting in a recliner waiting for a cure. I can’t think about the future without a cure. Finding a cure will be better than a lottery win even if it’s too late for me.</p>http://findacure.parkinsons.org.uk/post/37410066242http://findacure.parkinsons.org.uk/post/37410066242Fri, 07 Dec 2012 17:06:09 +0000people with parkinsons<img src="http://25.media.tumblr.com/tumblr_meo6yvAZWB1rt6ojvo1_400.jpg"/><br/><br/><header><h1><small>What a cure means to</small> Anna</h1> <p>Anna is a person with Parkinson’s</p></header><p>It would mean getting used to a completely different lifestyle. I can’t imagine how I would feel if such a change was instant! I’ve got used to my present circumstances gradually! I would probably be in shock!</p>http://findacure.parkinsons.org.uk/post/37409513112http://findacure.parkinsons.org.uk/post/37409513112Fri, 07 Dec 2012 16:54:31 +0000people with parkinsons<img src="http://24.media.tumblr.com/tumblr_m9gnyeMjcI1rt6ojvo1_400.jpg"/><br/><br/><header><h1><small>What a cure means to</small> Tim</h1> <p>Tim is a person with Parkinson’s</p></header><p>What would a cure for me mean freedom from this living hell freedom to live a normal life.to have helped saved my marriage.freedom to be looked at in a normal way instead as some sort of freak.To hear those words a cure for Parkinson s words can,t sum up what how i would l feel.</p>http://findacure.parkinsons.org.uk/post/30379495177http://findacure.parkinsons.org.uk/post/30379495177Tue, 28 Aug 2012 11:32:37 +0100people with parkinsons<img src="http://25.media.tumblr.com/tumblr_m9bm3yaeGc1rt6ojvo1_400.jpg"/><br/><br/><header><h1><small>What a cure means to</small> Carol</h1> <p>Carol is a person with Parkinson’s</p></header><p>I am 71 years old and was diagnosed with PD in May this year. I initially thought it was the aftermath of shingles which I had in October 2011, but my youngest Son noticed I was having difficulty doing things with my left hand and walking with a jerky movement. So in 2012 after much nagging I went to my GP who thought I had PD and referred me to a neurologist who confirmed it. I am very well at present and I am taking Sinemet Low Dose 62.5mg. I am back to my normal energy levels, playing tennis swimming and gardening and looking after my Husband who is poor health. As I don’t know how long I will be able to care for him or how quickly the disease will progress a Cure would be wonderful.</p>http://findacure.parkinsons.org.uk/post/30178996517http://findacure.parkinsons.org.uk/post/30178996517Sat, 25 Aug 2012 18:04:45 +0100people with parkinsons<img src="http://24.media.tumblr.com/tumblr_m8gh1yvvqN1rt6ojvo1_400.jpg"/><br/><br/><header><h1><small>What a cure means to</small> Karen</h1> <p>Karen is a carer or family member</p></header><p>It would be the best present ever to put an end to seeing my Dad struggle to do the things that those without Parkinsons take for granted. He would be able to enjoy his retirement and do all those things he wanted to do but now is unable to as his movements are slow, rigid and walking is difficult. <br/><br/>It would make me so happy to see him in good health and not have to worry when the worse is going to happen. To see an end to the frustration he must feel. <br/><br/>I am so proud of how he deals with things and keeps very positive. A cure would be fantastic for all those who suffer with Parkinsons.</p>http://findacure.parkinsons.org.uk/post/29004413996http://findacure.parkinsons.org.uk/post/29004413996Wed, 08 Aug 2012 22:29:57 +0100carers or family members<img src="http://24.media.tumblr.com/tumblr_m8g38oh6bx1rt6ojvo1_400.jpg"/><br/><br/><header><h1><small>What a cure means to</small> Terry</h1> <p>Terry is a person with Parkinson’s</p></header><p>It would give me my life back. Since being diagnosed last year my life been taken over by PD; but I am enormously lucky as I have early signs of the disease and I can cope with them. But what is to come? What will tomorrow be like? Will I be able to look after my wife and grandchildren without them looking after me? At times I feel that my body is slowly disintegrating, at other times I have my spirits lifted by support and help. But all the time there is a denial and people without the disease don’t know how to approach the subject and the sufferers; hence there is a wall of silence which a cure would take away. So for everyone, please, please, please bring on a cure!</p>http://findacure.parkinsons.org.uk/post/28986747204http://findacure.parkinsons.org.uk/post/28986747204Wed, 08 Aug 2012 17:31:35 +0100people with parkinsons<img src="http://24.media.tumblr.com/tumblr_m7xqsvE0J01rt6ojvo1_500.jpg"/><br/><br/><header><h1><small>What a cure means to</small> Valorie</h1> <p>Valorie is a carer or family member</p></header><p>A cure for Parkinson’s would mean that my dad would be able to write his bets out, and the bookmaker wouldn’t have to ask me to clarify what was written on the betting slip. A cure would mean that my son could play dominoes with his granddad. My mum wouldn’t have to feed, bathe and clothe her husband. They would be able to go out and socialise again, dance with one another. Imagine… no more hospital visits and no more swallowing a cocktail of tablets 4 times a day, every day. A cure would mean my dad could laugh, stand, walk, shave his beard, have a good night’s sleep, use the toilet on his own, have some independence, have a life. <br/>A cure would mean that I have my dad, my hero, back.</p>http://findacure.parkinsons.org.uk/post/28277020308http://findacure.parkinsons.org.uk/post/28277020308Sun, 29 Jul 2012 19:46:06 +0100carers or family members<img src="http://25.media.tumblr.com/tumblr_m6ltdex6Ag1rt6ojvo1_400.jpg"/><br/><br/><header><h1><small>What a cure means to</small> Fiona</h1> <p>Fiona is a carer or family member</p></header><p>It would mean the unrecognisable man that was my young fit healthy and handsome husband, diagnosed at 40 and now 9 years on, might be free from the pain, speech problems, drooling, memory loss, freezing and loss of confidence, from who was once the most funny and outgoing man, but now missing out from seeing his beautiful girls grow up and enjoying their school/sporting achievements, being social once more, being part of the community, enjoying an evening out with his wife, being freed from anxieties, hallucinations, medication timings, and giving us back the man he was, instead of this hideous disease that is robbing us of this once beautiful man and now destroying him and our family unit.</p>http://findacure.parkinsons.org.uk/post/26445071934http://findacure.parkinsons.org.uk/post/26445071934Tue, 03 Jul 2012 22:36:49 +0100carers or family members<img src="http://24.media.tumblr.com/tumblr_m6lduhk2Rw1rt6ojvo1_400.jpg"/><br/><br/><header><h1><small>What a cure means to</small> Joy</h1> <p>Joy is a carer or family member</p></header><p>My husband would wake refreshed from a good sleep, get up, washed, dressed and enjoy a good breakfast, then join me in painting the garden fence. All without a cocktail of 23 tablets a day.</p>http://findacure.parkinsons.org.uk/post/26424175950http://findacure.parkinsons.org.uk/post/26424175950Tue, 03 Jul 2012 17:01:28 +0100carers or family members<img src="http://25.media.tumblr.com/tumblr_m6fy1uXmYX1rt6ojvo1_500.jpg"/><br/><br/><header><h1><small>What a cure means to</small> Pat</h1> <p>Pat is a carer or family member</p></header><p>Ten years ago, my partner was diagnosed with Parkinson’s Disease and, as it is for everyone faced with PD, his life and that of his family changed for ever. Before that day, he was a rock climber and moutaineer, climbing around the world: in The Alps, Nepal, Canada and South America. The convention was you got to name a route if you were the first person to do it - Brian clocked up several such rock climbing routes. It was a way of life to him and many of his climbing friends site him as being a great inspiration. He never complains about his lot and faces this disease with stoicism, still doing what he can to help others. He most certainly deserves a second chance a cure would give him.</p>http://findacure.parkinsons.org.uk/post/26219291513http://findacure.parkinsons.org.uk/post/26219291513Sat, 30 Jun 2012 18:32:15 +0100carers or family members