Jane Hill

Jane Hill

"A cure for Parkinson's would mean that my dad would not have had to live with 10 years of restricted movement and of medication. And it would have meant an enormous amount to my mum, who cared for him for many, many years.

It would mean so much for those who are diagnosed, their families, friends and those who care for them. It's something we all really have to fight for."

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carers or family members

What a cure means to Lynne Lynne is a carer or family memberA cure for Parkinson’s would mean having my beloved husband back. Seeing him able to smile & look happy and proud, as he did on the day he gave our beautiful daughter away at her wedding this year. Seeing him not in pain. Seeing him able to walk freely again. Seeing him not struggle with words that won’t come out right. Seeing him enjoy eating a good meal. Seeing him get out of bed unaided, to dress without help & to look forward to the day ahead. Seeing him able to do the daily things that most of us take for-granted. Seeing him express his feelings and not be mistaken for being just a misery. Seeing him with the confidence he used to have. Most of all being able to have a normal life, a fulfilled life, an active life. To see the man in the photo who is still there behind the Parkinson’s mask. The man who wants so badly to enjoy life and to have fun again.
What a cure means to Jack Jack is a carer or family memberI am 12 years old, and my dad was diagnosed 13 years ago. I was never brought up in the same fashion as all of my friends at school, I was taught to ride a bike by my mum, with my dad watching but sitting, my dad lost his job as a pilot at BA because of parkinson’s disease. I run a “tuck shop” at school and I will donate the proceeds to Parkinson’s UK so far in 7weeks I have raised around £190.
What a cure means to Jane Jane is a carer or family memberMy husband has worked incredibly hard all his life. He was found to have PD at the age of 51 when we were told it had probably started approx. 2 years before. Consultant said it would impact on our lives within 5 years, seriously impacting on our lives within 10. These last few months, it seems to have raced ahead. He tires easily, lumbers instead of walks, balance is deteriorating and shakes constantly. He is 56. I can see no future. Our retirement travelling and exploring is now gone. Financial security - thats what we were going to be doing for the next few years before retirement. Not sure thats going to happen now, as he may have to ‘retire’ a lot sooner than planned. Its heartbreaking for me to watch him deteriorate, hard for me to come to terms with the loss of our planned future, and difficult to try and hide this insecurity in front of my adult children. Its even harder for him. If there is a cure to it, lets hope its found soon.
What a cure means to Karen Karen is a carer or family memberIt would be the best present ever to put an end to seeing my Dad struggle to do the things that those without Parkinsons take for granted. He would be able to enjoy his retirement and do all those things he wanted to do but now is unable to as his movements are slow, rigid and walking is difficult. It would make me so happy to see him in good health and not have to worry when the worse is going to happen. To see an end to the frustration he must feel. I am so proud of how he deals with things and keeps very positive. A cure would be fantastic for all those who suffer with Parkinsons.
What a cure means to Valorie Valorie is a carer or family memberA cure for Parkinson’s would mean that my dad would be able to write his bets out, and the bookmaker wouldn’t have to ask me to clarify what was written on the betting slip. A cure would mean that my son could play dominoes with his granddad. My mum wouldn’t have to feed, bathe and clothe her husband. They would be able to go out and socialise again, dance with one another. Imagine… no more hospital visits and no more swallowing a cocktail of tablets 4 times a day, every day. A cure would mean my dad could laugh, stand, walk, shave his beard, have a good night’s sleep, use the toilet on his own, have some independence, have a life. A cure would mean that I have my dad, my hero, back.
What a cure means to Fiona Fiona is a carer or family memberIt would mean the unrecognisable man that was my young fit healthy and handsome husband, diagnosed at 40 and now 9 years on, might be free from the pain, speech problems, drooling, memory loss, freezing and loss of confidence, from who was once the most funny and outgoing man, but now missing out from seeing his beautiful girls grow up and enjoying their school/sporting achievements, being social once more, being part of the community, enjoying an evening out with his wife, being freed from anxieties, hallucinations, medication timings, and giving us back the man he was, instead of this hideous disease that is robbing us of this once beautiful man and now destroying him and our family unit.
What a cure means to Joy Joy is a carer or family memberMy husband would wake refreshed from a good sleep, get up, washed, dressed and enjoy a good breakfast, then join me in painting the garden fence. All without a cocktail of 23 tablets a day.
What a cure means to Pat Pat is a carer or family memberTen years ago, my partner was diagnosed with Parkinson’s Disease and, as it is for everyone faced with PD, his life and that of his family changed for ever. Before that day, he was a rock climber and moutaineer, climbing around the world: in The Alps, Nepal, Canada and South America. The convention was you got to name a route if you were the first person to do it - Brian clocked up several such rock climbing routes. It was a way of life to him and many of his climbing friends site him as being a great inspiration. He never complains about his lot and faces this disease with stoicism, still doing what he can to help others. He most certainly deserves a second chance a cure would give him.
What a cure means to lee lee is a carer or family memberit would mean a normal way of living for me sue and my 2 lads, we care for sue walker who was dx 3 years this october but we know she has had it alot longer , we first noticed things were going wrong in 2001 and have had a battle with gps and consultants to let sue get a dat scan ,it has been a rocky road for me and sue with symptem problems and med problems like compusive behaviours which have had some terrible effects on the family this is somethink i hear alot on our site on fb parkinsons awareness worldwide so yes if there was a cure for pd it would make a differance in many ways for us , as we might not have the financial problems , relationship problems ,and the health problems our family are suffering thank you for the support
What a cure means to Liz Liz is a carer or family memberIt would mean getting my old dad back, he would be able to come out walking with us again, he would stop failing over and I could stop worrying about him
What a cure means to Anthony Anthony is a carer or family memberIt would mean I could have my dad, my best friend back! To see the slow ways in which the person you knew is taken away from you with each visit is cruel. Parkinson’s feels like saying a long good-bye even when the person is still there.
What a cure means to abigail abigail is a carer or family memberA cure for Parkiinsons would mean that my dad would not have trouble working and my family would not be living with the fear of him being in a wheelchair and unable to care for himself by the time he’s in his mid fifties.