Jane Hill

Jane Hill

"A cure for Parkinson's would mean that my dad would not have had to live with 10 years of restricted movement and of medication. And it would have meant an enormous amount to my mum, who cared for him for many, many years.

It would mean so much for those who are diagnosed, their families, friends and those who care for them. It's something we all really have to fight for."

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people with parkinsons

What a cure means to sandra sandra is a person with Parkinson’sA cure for me would be my dreams come true. I was only 40 when my symptoms started, now at 48 i suffer everyday with muscle pains and cramp and take lots of pills, which i have to pay for. My life is so restricted now i hardly do any fun things its so hard.
What a cure means to susan susan is a person with Parkinson’sa cure for parkinsons would mean everything to me and my family, i never thought that it would affect me in the way it has it can be so dificult to cope with some days and other days are better, a cure would be like a miracle i would be able to feel normal again i have forgot what its like, cant remember life before pd, people look at you in disbelief when you tell them you have pd they say but you look so normal but they dont see me 24/7 my family see the good and the bad days and i would not get through each day without my hubby so i hope a cure is found for my sake and for his.
What a cure means to J.A. J.A. is a person with Parkinson’sIt would be nice to be normal again - and free from depending on medication that sometimes works.
What a cure means to Elaine Elaine is a person with Parkinson’sNot having people trying to assist me, with things I can manage slowly. Like getting money out of my purse.
What a cure means to David David is a person with Parkinson’sIt would mean getting my life back.
What a cure means to Mary Mary is a person with Parkinson’sTo me a cure would mean everything, I would get my independance back which is very important to everyone. I would be able to do all of the things that I did before that now seems an effort. I would not feel a burden to my family and wouldn’t feel so alone and frightened of the future. It would mean I could get my life back and be the happy-go-lucky person that I once was.
What a cure means to Kay Kay is a person with Parkinson’sEach morning when i wake up the first thing I do is pick up my laptop. Being a very upbeat, positive, optimistic person means that I HAVE TO believe there is a cure imminent. Sometimes I check out The Parkinson’s websites, but most of the time I don’t. I am more likely to be messaging my family or old students who were also part of my family; checking on my acquaintances, seeing if all is well with the world. Living on my own with Parkinson’s Disease is a challenge, made more so by a young puppy. The new puppy is my reason to get out of bed. He is a rescue mutt and we have a lot in common! I can’t remember life without him now. I am slowly, with the aid of dictation software, writing my memoirs. There is so much to remember and I want my son and future generations to remember me as a fun, travelled, artist, Mom, professor, etc. not just someone sitting in a recliner waiting for a cure. I can’t think about the future without a cure. Finding a cure will be better than a lottery win even if it’s too late for me.
What a cure means to Anna Anna is a person with Parkinson’sIt would mean getting used to a completely different lifestyle. I can’t imagine how I would feel if such a change was instant! I’ve got used to my present circumstances gradually! I would probably be in shock!
What a cure means to Tim Tim is a person with Parkinson’sWhat would a cure for me mean freedom from this living hell freedom to live a normal life.to have helped saved my marriage.freedom to be looked at in a normal way instead as some sort of freak.To hear those words a cure for Parkinson s words can,t sum up what how i would l feel.
What a cure means to Carol Carol is a person with Parkinson’sI am 71 years old and was diagnosed with PD in May this year. I initially thought it was the aftermath of shingles which I had in October 2011, but my youngest Son noticed I was having difficulty doing things with my left hand and walking with a jerky movement. So in 2012 after much nagging I went to my GP who thought I had PD and referred me to a neurologist who confirmed it. I am very well at present and I am taking Sinemet Low Dose 62.5mg. I am back to my normal energy levels, playing tennis swimming and gardening and looking after my Husband who is poor health. As I don’t know how long I will be able to care for him or how quickly the disease will progress a Cure would be wonderful.
What a cure means to Terry Terry is a person with Parkinson’sIt would give me my life back. Since being diagnosed last year my life been taken over by PD; but I am enormously lucky as I have early signs of the disease and I can cope with them. But what is to come? What will tomorrow be like? Will I be able to look after my wife and grandchildren without them looking after me? At times I feel that my body is slowly disintegrating, at other times I have my spirits lifted by support and help. But all the time there is a denial and people without the disease don’t know how to approach the subject and the sufferers; hence there is a wall of silence which a cure would take away. So for everyone, please, please, please bring on a cure!
What a cure means to Hywel Hywel is a person with Parkinson’sFinding another topic to write poems about!! My Parkinson’s & Me People often ask why I make Public my health. -It’s not out of conceit, and certainly not for the wealth. But fourteen long years ago something happened to me, Since when I’ve never stopped trying to be the best I can be. On that day - a doctor told me in five minutes flat, You’ve got Parkinson’s Disease – its as simple as that! At 32 years young I was left quite numb and quite cold – I thought this was a condition that only affected the old. But with the support of my Parkinson’s Nurse, I’ve learnt to live with my illness as a friend, not a curse, And with a positive outlook and a good state of mind, I’ve shown how to overcome challenges – however unkind. Too often people complain about the most trivial of things, With all the doom and the gloom this pessimism brings, But if people just relaxed and put a smile on their face, They might even find their world a happier place. And the reason I write is to show how I cope, And to give any new sufferers some much needed hope. (I’m still working full-time 14yrs after being diagnosed) Hywel Griffiths May 2012